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JYLIAN MEETS THE WIGGLES!!! On Saturday, August 5th, Jylian's wish was granted by the Make-A-Wish Foundation. Jylian met her musical heroes, the WIGGLES!!! It was such an awesome experience, and Jylian's joy was so evident. We were picked up in a limo and taken to the "meet and greet" with Greg, Murray, Jeff and Anthony Wiggle! The Wiggles truly love what they do, and they were so genuine and so sweet with Jylian. The entire room cheered when she did her little sign for "wiggles" (which we see about ten times a day as she requests another song, book or video)! I think the concert began late because Jylian did not want to let them go get ready! After the meeting, we were the first ones in the auditorium for the concert. Jylian jumped and danced as if she hadn't ever had a care in the world. It was emotional. During the concert, Jeff and Murray came down and talked to her! We will ALWAYS cherish the amazing day! |
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FUND RAISER INFO June 17, 2005 "Jelly Beans for Jilly Bean" was a huge success! The Fort Worth Cats raised over $15,000 for the World Craniofacial Foundation this year! Jylian was so sweet, and we had so much fun at the game. Thank you to all of you who were there to support us. We were also able to raise awareness this year through an article in the Fort Worth Star Telegram and some TV interviews. It is so important that people learn about individuals who have rare craniofacial syndromes and disorders. The Foundation continues to do great things in the lives of these children, and we are glad to be able to assist! Thanks again everyone. June, 2005 JELLY BEANS FOR JILLY BEAN!!! The Fort Worth Cats Baseball team is hosting the third annual "Jelly Beans for Jilly Bean" game (named for our little bean) on June 17, 2005! Please come and support the World Craniofacial Foundation! The WCF provides services to children around the world with craniofacial syndromes and disorders. This year's game will be better than ever. Jylian will be joined by Mayor Moncrief, Dr. Kenneth Salyer, Scott Murray and many more. Her friends Ahmed and Mohamed (the formerly conjoined twins) will be there, and 20/20 will also be reporting. We can't wait to see you there too! August, 2004 "Jelly Beans for Jilly Bean"- The Cats have adopted a cute name for our annual World Craniofacial Foundation fundraiser. The Cats helped raise over $1,000 for the WCF at the game this year, and Jylian got to throw out the first pitch! We can't wait for the event to get bigger and better every year! March 17, 2004 Jylian's Second Birthday Our friends and family raised about $1,300 for the World Craniofacial Foundation in honor of Jylian's second birthday. Thank you so much. The Foundation included Jylian in their Spring newsletter to say thanks to all of you who donated! If you would like a copy of the newsletter, please let me know (Kendall), or go to www.worldcf.org. August, 2003 The Cats raised over $5,000 for the Craniofacial Foundation. Jylian got to go to her first game! She's one year old, and she is doing well. She is learning where all her body parts are, and she can tell you how old she is! We are so proud of her accomplishments. |
CHILDREN'S CRANIOFACIAL ASSOCIATION June, 2006 In between visits at Johns Hopkins in Baltimore, we were able to attend part of the 2006 CCA retreat in Hershey, PA. I don't know what we'd do without the love and life-long friendships we've developed with our CCA family! It was, once again, an inspirational and life-changing event! June, 2005 We were so excited to go to the CCA family retreat again this year! It was in Nashville, and we had so much fun reuniting with families from all over the country. The services that the CCA provides are so meaningful. The children love to get together and share experiences, and it is just as beneficial for the parents! Jylian got to swim this year, and she did great kicking in the water. What a blessing. Thanks CCA! June, 2004 We had an amazing time at the CCA annual retreat in Tempe! We met some wonderful families, and it was so rewarding for John and I. It was fun for Jylian as well, and we are already planning on being at the retreat next year. I plan to keep up with the friends we have made; The prayers and support are always needed! Thanks again to the CCA. Please visit their website located with the other Links! |
JULY 2004- After 2 years and 4 months....JYLIAN IS TRACH-FREE! |
Dr. Salyer (Jylian's wonderful craniofacial surgeon) with mommy and Jylian at the Craniofacial Christmas Party. |